We have had some amazing experiences over the years. Marriage, graduating college, buying a house, traveling and bringing two special souls into our family. When I sit here and think about these milestones, blessings and experiences I cannot help be remember the challenges we have faced as a family as well.
If you had told me that 10 years into my marriage my husband would be facing a debilitating disease and further more a life changing surgery to cure this disease I would have never believed you. Let’s face it, we never think that the medical issues or struggles will hit us. But it does.
Meet Twinkle VanFleet from Sacramento California. Twinkle was diagnosed in 2003 with Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy Syndrome (CRPS/RSD), a painful, debilitating and often progressive central nervous system disorder. A spinal cord stimulator has helped manage her pain, and she has expanded her advocacy efforts on behalf of those with neuropathic pain disorders from online to in-person events. As advocacy director and executive board member for the Power of Pain Foundation, Twinkle works on policy efforts, patient awareness and many other aspects of chronic pain.
After reading all of the 2015 Bakken Invitation honorees I was so inspired and ready to use our second chance to do good for others. Also, I was kind of put in my place, sure we had our struggles over the years but thankfully Jeremy is doing well now with his ostomy. People go through so many health and medical issues that are terrible. A great time to reflect and be inspired to do good in our hurting world.
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